Whoever you are and whatever the challenges you face with regard to Congenital Diaphragmatic Hernia (CDH), we are here to support you.
CDH Australia is a non-judgemental organisation that supports a diverse range of families affected by CDH . This includes families expecting a baby diagnosed with CDH, families caring for a child with CDH, adults with CDH and grieving families who have lost a child to CDH.
Our organisation is run by volunteers who have experienced all facets of CDH so we understand the issues families face in their journey as we have been there ourselves. And although everyone’s experiences are different, the common thread that ties us together—CDH— allows us to support each other with compassion and empathy.
We strive to build upon our partnerships with medical professionals so that we can work together to provide CDH education and support research into the causes and better treatments for CDH. We facilitate knowledge sharing between our families and care providers through our annual forums and publications and we believe collaboration is an important factor for advancing service levels in care.
We hope you find the information provided on our website helpful and we encourage you to visit our Guest Book and give us feedback so we can continue to improve our website for all our users.
This site is dedicated to the memories of all our CDH children who are no longer with us.
Meet our kids
Our beautiful Cherub Rebecca Jade was diagnosed with a left sided CDH at our 18 week ultrasound. What we thought was going to be a routine scan where we found out the sex of our baby turned out to be the beginning of the hardest journey that Carl and I have ever had to travel….continued
I had a scan at 8 weeks to confirm our due date..18th November 2009. I felt great. In fact, apart from the usual nausea, I was really starting to get ‘into’ this pregnancy and enjoy it. In fact, out of all my pregnancies, I enjoyed
I was 14 weeks pregnant when we found out that the baby I was carrying had CDH. The doctor was really upset when she told me the news but I don’t think the full impact of what was happening hit me until I went home and looked up CDH on the Internet…continued
19 - 22 March 2001
This is the story of our beautiful little girl, Emma. She blessed our lives. In June 2000, we found out that we were expecting our first child. We were told our little baby was due on 11 March 2001. Things went pretty well, and at 12 weeks I decided to take the option of having a neuchal translucency scan…continued
We would like to acknowledge the help and support of our partners