Comments for CDH Australia

Comment on Guest Book by marika

marika — Sat, 21 Apr 2012 13:20:36 +0000

Today is the 1st Birthday for my Grandsons Twins Tyzaak and Zaine.
Zaine lost his battle with CDH 22 hours after he was born.
Happy Heavenly Birthday Zaine and Happy 1st Birthday our Darling Tyzaak x

Comment on Guest Book by lollylegs

lollylegs — Thu, 24 Nov 2011 16:00:43 +0000

So sorry for your loss Marika. It must have been heart breaking for your daughter and the entire family. I am sure Tyzaak has filled your families lives with lots of joy and love. Since I last wrote I have been blessed with another grandson, once again not a great entry into our family. He was born 14 weeks premature, and thankfully he is a healthy little boy now. But the roller coaster that you speak of is always a ride I dont enjoy. Sending my best to you and your family. Your little angel cherub Zaine will be in our thoughts as all the angel cherubs are. Stay strong and bless you and your family.
Regards Carol

Comment on Guest Book by marika shepherd

marika shepherd — Mon, 21 Nov 2011 03:13:29 +0000

Thank You Carol,
My twins were born 21 st April 2011,@ 31 weeks.
Tyzaak and Zaine. Zaine (CDH)servived only 22 hours.
Sadly Tzaak has been diagonsed with Cererabl polsy.
Our rollercoaster ride with all the emotions associated with early birth, loss and now CP has had an enourmous inpack on our lives.
My thoughts go out to all exspectant families and best wishes to those whom have been touched by CDH.
Regards Marika

Comment on Guest Book by Belinda Steedman

Belinda Steedman — Mon, 01 Aug 2011 12:17:35 +0000

What a valuable organisation. I had my son in South Africa and had no support other than the wonderful doctors, nurses and our family and friends. It would have been great to have been able to look for support from people in the same position. Keep up your wonderful work!

Comment on Guest Book by Danielle Kessner

Danielle Kessner — Wed, 25 May 2011 11:09:19 +0000

Dear Alexandra,
Sorry to hear your little boy has CDH and a possible VSD but so glad you have found us and the support everyone here can offer. Make sure you have a look on the forums as we a few expectant mums on there at the moment. Wishing you all the best over the coming months xx

Comment on Guest Book by Alexandra Lane

Alexandra Lane — Wed, 25 May 2011 10:25:22 +0000

I am so glad I found your website, my baby boy, due on Sept 2011 has a CDH and possibly VSD, It really is a daunting time, and it is hard to find anyone else out there in the same situation. My partner and I are coping well at the moment, but its always in the back of our minds, Ive read the stories on the home page, They are all very moving, and have helped me a great deal. Thank you so much for creating this site, your doing a great job.

Comment on Guest Book by lollylegs

lollylegs — Tue, 05 Apr 2011 13:08:24 +0000

Hi Marika
Hope all is going well with you and your family. The best thing you can do is stay positive for your daughter. This can be hard at times. My grand daughter was born with left sided CDH in December 2009. I shed many tears for my son and his wife, prior to the birth. Thankfully it all worked out for them. The is a lot of info on the net but it can be overwhelming and not always factual. The best thing you can do is maybe join your daughter on her visits to the doctors. Sometimes you will hear things that she may not due to her emotional state. Each and every case is different so I can only wish you and your family all the best. Take care.
Carol

Comment on Guest Book by Ingrid moore

Ingrid moore — Mon, 21 Feb 2011 09:37:18 +0000

Just popping in. Great work girls. Love the under construction pics of the kids. Very creative!

Comment on Guest Book by marika shepherd

marika shepherd — Wed, 09 Feb 2011 04:35:31 +0000

My Daughter is having Twins boys, but has found out the one twin has CDH.
I am srambling looking for all the info possible ,so I can be prepared for what to exspect.
I can see how this effects so many families,and to you all my thoughts are with you ,and from that I will try and take some strength from this site and stay possitive. x

Comment on What is CDH? by 365 days to go… « The Chaplow Update

365 days to go… « The Chaplow Update — Sat, 01 Jan 2011 10:21:38 +0000

[...] but they are all loved the same no matter what. This little one will be bought into the world with CHD and will have a longer stay in hospital than most. Paul and Sarah are prepared as much as they can [...]