char-doc“As the Medical Director and co-head of the Grace Centre for Newborn Care which cares for many babies who have surgical conditions I have worked with CDH Australia for nearly 15 years. During this time they have been extremely professional and supportive to people with CDH and their families as well as health professionals. During the last decade it would not be an exaggeration to say that the care for babies with CDH has been revolutionised as evidenced by the survival rate which has increased significantly from 50% to well over 85% comparable to that of the best centres worldwide.

Multidisciplinary follow up clinics are being established in many hospitals to ensure survivors have the best quality of life possible and to intervene when complications are identified. This is in no small part attributable to the rich collaborations between families and health professionals. I look forward to an ongoing association.”

Professor Nadia Badawi AM
Medical Director Grace Centre for Newborn Care
The Children’s Hospital at Westmead
Macquarie Group Foundation Chair of Cerebral Palsy
Cerebral Palsy Alliance

“As the Director of Neonatal Medicine at The Royal Children’s Hospital in Melbourne I can strongly endorse the endeavours of CDH Australia. This group of committed families have provided immeasurable networking support to new parents who face this rare condition in their newborn babies. They are well placed to direct families to appropriate resource as required, and their annual forums provide educational updates to affected families through provision of up to date research results. Beyond this, CDH Australia engage health professionals as an active consumer group, and stimulate research into areas of concern for affected families. In all of these facets, they are doing fantastic work.”

Dr Rod Hunt FRACP, MRCP (UK), MMed, PhD
Director of the Department of Neonatal Medicine
The Royal Children’s Hospital in Melbourne

CDH Australia works with medical and healthcare professionals who treat CDH to develop ways in which we can effectively work together to provide CDH education and support research into the causes and better treatments for CDH.

We encourage all healthcare professionals with an interest in CDH to contact us to find out how we can assist you. Please email

We also encourage healthcare professionals to become members of CDH Australia.

Click here to view the names of Australian hospitals involved in the treatment of CDH.