CDH Australia is a national not for profit support group run solely by volunteers for families, friends and medical professionals affected by Congenital Diaphragmatic Hernia (CDH).
We are a registered Health Promotion Charity with Deductible Gift Recipient (DGR) status. Our organisation is run by a board of directors and we have membership spread throughout Australia. Our group consists of families expecting a baby diagnosed with CDH, families caring for a child with CDH, adults with CDH and grieving families who have lost a child to CDH.
Our mission as a volunteer organisation is to provide support to families affected by CDH. We will support and help fund research into the causes and better treatments of CDH. We will help educate families and the community about CDH.
The services we offer families include:
- telephone support
- this website packed with information, links, photos and stories
- information booklets
- biannual newsletter with group updates, latest CDH news and member profiles
- access to online forums and chat rooms
- parent-to-parent matching – helping families who have experienced similar CDH situations get in contact with each other
- annual forum held in October each year alternating between cities around Australia.
