Stories of love and loss

These stories are written by families who have lost a child to Congenital Diaphragmatic Hernia (CDH). These memorials are a testament to all the beautiful CDH angels who continue to mean the world to their families.


It is important to note, outcomes for children with CDH are varied and depend on factors such as the severity of the condition.


Our family stories are heartfelt and moving but can also be potentially triggering. For support options, please visit How we can help 


Please respect the privacy of the authors by not sharing the content without their permission. Some stories are password protected: Please email us to request the CDH stories password.

Alyssa Kessner

Damien Smith

Sean Eason

Rhian Illiard

Emma West

Brodie Bennett

Rhiannon Milby

Brayden Ross

Gabrielle Fergusson

Chloe Mitchell-Greenfield

Max Logozzo

Léon McDermid

Elli Mills-Mair

Skyla Manawa Te Maipa

Noah Polacska

Jessica Murphy

Oskar Mugica

Alexander Sievers

Jake Marshall

Elijah Moodie

Isaac Berry

Lachlan Romanyk

Clementine Bitmead

Arabella Chesterfield-Kneen

Share your story


Your experience may help other families navigate their own CDH journey. You’re invited to email us your story.

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