Stories of love and loss

These stories are written by families who have lost a child to Congenital Diaphragmatic Hernia (CDH). These memorials are a testament to all the beautiful CDH angels who continue to mean the world to their families.


It is important to note, outcomes for children with CDH are varied and depend on factors such as the severity of the condition.


Our family stories are heartfelt and moving but can also be potentially triggering. For support options, please visit How we can help 


Please respect the privacy of the authors by not sharing the content without their permission. Some stories are password protected: Please email us to request the CDH stories password.

Share your story


Your experience may help other families navigate their own CDH journey. You’re invited to email us your story.

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