Small national charity with a big heart looking for a very special volunteer to connect new families with support and services.


We are looking for an empathetic and warm person to become our new volunteer Family Coordinator. Our not-for-profit supports families with babies born with the rare condition Congenital Diaphragmatic Hernia (CDH).


As our Family Coordinator and a CDH Australia Board member, you will make a real difference to Australian families affected by CDH. Your experience with the Australian medical system and excellent communication skills will be highly regarded by our team and community.


2022 is an exciting time to join our team. We are working on a third research project funded by our organisation and collaborating with a leading medical institution to improve the lives of families affected by CDH. We have previously funded two other research projects which improved the treatment options and outcomes of babies born with CDH.

How to apply


1/ Download the Family Coordinator Position Description


2/ Please contact us with your CV, or cover letter, outlining your work experience, education, or lived experience relevant to the role.


3/ Email: hr@cdh.org.au by 16 October 2022

The role


The Family Coordinator role is an important Director of the Board position who welcomes new families to our community and connects them with information, support, and services.


Our Family Coordinator Board is very active within our organisation. You will be passionate about the needs of CDH families and want to improve their lives.


Previous experience as a Board member or volunteer is not essential, however a commitment to a 12-month posting is a requirement, and any of the following skills or background will be highly regarded:


  • An experience with Congenital Diaphragmatic Hernia
  • Familiarity with the Australian medical system
  • Background in counselling or allied health

The tasks


The Family Coordinator is the first point of contact at CDH Australia for families who have received a diagnosis for Congenital Diaphragmatic Hernia for their child.


This role connects families with the community, peer-support, CDH information, support, and services. You will manage communication with our families via Facebook, Instagram, and email.


You will have the support of a volunteer Board of Directors and you will work closely with the President to coordinate the needs of our community, improve processes, and prepare a monthly report for the Board.


Training provided


Our current team members will work alongside you to provide a hand over and will be available for questions as you become comfortable with the role.




Our community is based all over Australia, our services are mostly online, and our volunteers all work remotely. Our team meets online once a month via video chat, we regular stay in touch via WhatsApp, email, and phone calls. Due to the nature of our remote workspace, your availability for for regular and clear communication is essential.

Additional information:


Time commitment: Our volunteers work from home at times that suit their schedule.  Approx. 2-4 hours per week, plus attendance at the monthly online Board meeting.


Duration: 12 months


Start date: 1 November 2022


Successful applicants will need to complete the following before commencing the role: Reference check, National Police Check, CDH Australia membership, CDH Australia volunteer service agreement acceptance.

Thank you 


Thank you for applying. We appreciate your offer to help families impacted by Congenital Diaphragmatic Hernia.


Questions? hr@cdh.org.au


*Please note our office is manned by volunteers and part-time staff. We will respond to your enquiry as soon as possible.

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