Written by Audrey’s mum, Honor
I found out I was pregnant after a nerve-wracking IVF journey, and was so excited so see my baby at the 13 week scan, I couldn’t have possibly imagined hearing that something could be wrong. I walked in expecting to see my perfect little peanut bouncing around, but was told that the heart looked like it was on a strange axis. We were reassured that this might be some variant of normal, but that it would be safest to have another scan soon. At 16 weeks the scan still had no definitive answers, but her heart remained on a strange axis. Again, we booked in for another scan. At 19 weeks, I saw my baby’s stomach next to her heart, and the diagnosis was made. Unlike most CDH-er parents, I had heard of CDH before, and absolutely terrified of what this would mean for my little one.
I went to a Maternal Fetal Medicine (MFM) specialist the following week, who confirmed the CDH diagnosis and placed us in the moderate-severe category. We spoke to many different doctors and surgeons, who all weighed in on what life might look like if she survived. We were extensively counselled about our options – and that we didn’t have to continue with the pregnancy if we didn’t want to. I found those conversations particularly confronting, because this pregnancy was so deeply wanted. We weighed up all the statistics we had been given, and for us, a 40% chance of bringing home our baby was worth fighting for.