CDH research

By funding Congenital Diaphragmatic Hernia (CDH) research we are offering our community a brighter future. CDH is not well known in the medical community and is considered a rare defect. Families often face delays in receiving a diagnosis and appropriate medical care.

 

We dedicate a significant portion of the funds we raise to CDH research.

2018

 

We proudly funded our first CDH research grant into new therapies and treatments for babies diagnosed with this condition.

 

With the help of fundraisers and donors in the CDH community, we contributed $30,000 to a CDH research project with The Fetal Therapy Research Group to investigate new therapies that could help CDH babies’ lungs develop better during pregnancy.

 

The Fetal Therapy Research Group at The Ritchie Centre (Monash University and Hudson Institute of Medical Research) is working towards improving outcomes for babies who have difficulty breathing at birth due to CDH.

 

One researcher, Dr Aidan Kayshap, focuses on improving lung development in these babies before they are born, so that one day all babies with CDH, and their parents, can breathe a little easier. This research contributed to the discovery of the benefits of delaying umbilical cord clamping at birth in infants with CDH.

 

2020

 

We donated $30,000 to The Hudson Institute of Medical Research in Melbourne to purchase a Concord Birth Trolley Table for participation in a global medical trial. The Concord Table will enable the medical team to improve birth for babies who need support by providing lifesaving care with the umbilical cord intact. Close to mum, bub will have the maximum benefit of blood from the placenta; and as we now know, delaying cord clamping has been shown to be beneficial where lung aeration is compromised.

 

It is hoped that our participation with The Hudson Institute, and the purchase of the Concord Table, will accelerate progress of the trial and provide vital experience to Australian clinicians on the logistics involved in providing support for babies born with CDH.

 

2021

 

We are planning our third research project. To stay informed, be sure to subscribe to our e-newsletter.

Donate

Help us continue to fund vital CDH research and hopefully improve the outcome for children born with CDH. Make a tax-deductible donation today.