Our generous donors and supporters have helped us to fund three research projects with the aim of improving outcomes for babies born with Congenital Diaphragmatic Hernia. By funding research we are offering our community a brighter future.
Current research 2022-2023
Gaps in the CDH Journey
Identifying research priorities to improve the outcomes of babies born with Congenital Diaphragmatic Hernia
If your family has been affected by Congenital Diaphragmatic Hernia, you are invited to take part in an online survey to help determine the healthcare and research priorities for CDH in Australia.
Click the button for more information about the project and to begin the survey.
The “Gaps in the CDH Journey” project is a collaboration between the Murdoch Children’s Research Institute and CDH Australia, supported by the James Lind Alliance.
This project’s vision is to improve the outcomes for children born with CDH through understanding the research priorities of people with a lived experience of Congenital Diaphragmatic Hernia in Australia.
The result will be the identification of the Top 10 Priorities for CDH Research in Australia.
The Top 10 Priorities will be published and shared with key groups such as research funders, healthcare providers, hospitals, research institutes, researchers, and the wider community.
By identifying, prioritising, and sharing the needs and questions of people with CDH, their families and healthcare providers our goal is to inspire further research, influence future care, and improve outcomes and wellbeing of those diagnosed with CDH in Australia.
This is your chance to have a direct and meaningful role in optimising the outcomes of babies born with, and those affected by CDH.
For more information and FAQs about the “Gaps in the CDH Journey” project please visit the Murdoch Children’s Research Institute website
Please share our survey
DOWNLOAD: Gaps in the CDH Journey – Marketing Toolkit ZIPPED
For more images and suggested copy to encourage participation, go to our webpage Gaps in the CDH Journey
2020
We donated $30,000 to The Hudson Institute of Medical Research in Melbourne to purchase a Concord Birth Trolley Table for participation in a global medical trial. The Concord Table will enable the medical team to improve birth for babies who need support by providing lifesaving care with the umbilical cord intact. Close to mum, bub will have the maximum benefit of blood from the placenta; and as we now know, delaying cord clamping has been shown to be beneficial where lung aeration is compromised.
It is hoped that our participation with The Hudson Institute, and the purchase of the Concord Table, will accelerate progress of the trial and provide vital experience to Australian clinicians on the logistics involved in providing support for babies born with CDH.
2018
We proudly funded our first CDH research grant into new therapies and treatments for babies diagnosed with this condition.
With the help of fundraisers and donors in the CDH community, we contributed $30,000 to a CDH research project with The Fetal Therapy Research Group to investigate new therapies that could help CDH babies’ lungs develop better during pregnancy.
The Fetal Therapy Research Group at The Ritchie Centre (Monash University and Hudson Institute of Medical Research) is working towards improving outcomes for babies who have difficulty breathing at birth due to CDH.
One researcher, Dr Aidan Kayshap, focuses on improving lung development in these babies before they are born, so that one day all babies with CDH, and their parents, can breathe a little easier. This research contributed to the discovery of the benefits of delaying umbilical cord clamping at birth in infants with CDH.
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