Mental health and wellbeing

Any experience with Congenital Diaphragmatic Hernia (CDH) can be challenging and stressful for parents, extended family members, and friends.  It is important to reach out and access support for your mental health and wellbeing when you need it.

Peer support


The CDH community in Australia is very active and supportive. The importance and benefit of feeling connected to others is well documented. Being connected and sharing experiences promotes good mental health. Our online support groups are a great place to find information, share your story and connect with others who have navigated the CDH journey.

Family and friends


If your family would like to help but they are not sure how, please refer them to our page Information for family and friends.



Post-traumatic stress disorder (PTSD) is a set of responses that can develop in people who have been through or witnessed a traumatic event. Read our fact sheet and guidance on CDH and PTSD.

Professional counselling


Visit your GP and discuss how you are feeling. The Better Access initiative gives Medicare rebates to eligible people, so they can access the mental health services they need. Support is available from eligible GPs and other medical practitioners, psychologists, social workers and occupational therapists. Eligible people can receive up to 10 individual and up to 10 group allied mental health services each year. For more information, visit

Mental health and wellbeing resources 


Links to Australian organisations with information and support for the mental health of you and your family.


Beyond Blue 24/7 mental health support. Information and support to help everyone in Australia achieve their best mental health.


Carers Australia Short-term counselling and emotional and psychological support services for carers and their families in each state and territory.


Embrace Multicultural Mental Health A national platform for multicultural communities and Australian mental health services to access resources, services and information in a culturally accessible format.


Head to Health An innovative website that can help you find free and low-cost, trusted online and phone mental health resources.


Headspace Free online and telephone service that supports young people aged between 12 and 25 and their families going through a tough time.


Kids Helpline A free, private and confidential, telephone and online counselling service specifically for young people aged between 5 and 25.


MensLine Australia A telephone and online support, information and referral service, helping men to deal with relationship problems in a practical and effective way.


MindSpot Clinic An online and telephone clinic providing free assessment and treatment services for Australian adults with anxiety or depression.


Relationships Australia A provider of relationship support services for individuals, families and communities.


SANE Australia Information about mental illness, treatments, where to go for support and help for carers.

Crisis support


If you, or someone you know, is experiencing emotional distress and would like to access immediate support, please connect with Lifeline. Services are available for all Australians experiencing emotional distress with access to free 24/7 crisis support and suicide prevention services.

Grief and loss


Unfortunately, not all babies and children diagnosed with this condition survive, and grief and loss can be a very difficult part of a family’s CDH journey. Visit our page on Grief and loss for support and information.

Contact Support Services

Our Support Services team can add you to our private support groups, answer questions, discuss financial assistance, or send out a care package. Send us an email and let us know how we can help you.

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